Insatiable: A Life Without Eating

“In addition to sensory deprivation, not eating is social deprivation. …What you cook, how you cook for others, and when you eat provide structure to your days and a sense of self. Food is a form of communication. Without it, you are adrift and missing a functional language. “
Andrew Chapman, Insatiable: A Life Without Eating

I don’t have a lot to say about this article, except that I’ve never read anything that got as close to describing my experience in 2010 (when I was sick for six months, on a liquid diet for 6 weeks, and on TPN for 6 weeks before having surgery to remove two-and-a-half feet of my small intestine) as this article did. I wish I had had this article then to share with people.

A New Perspective

My trainer Heidi and I were talking about our parents in my last session. (I’ve been working with Heidi for almost a decade and definitely referred to her as “my second therapist” back when I was still seeing my therapist.)

At first, it was pretty light, funny stories - like the time that my dad got so mad at a car salesman for trying to pressure him into buying a car that day (instead of letting him go home and “sleep on it”) that he immediately left, went to another car lot, and bought a car that day, without sleeping on it, mostly out of spite.

But then, as we kept talking, I told Heidi something about my dad that I’ve never been able to figure out. After Dad died, Mom sent me a bunch of paperwork from Dad’s desk - including a big stack of performance reviews that my dad had gotten at various jobs throughout his career.

That in and of itself is not the weird thing - to me, the weird thing is that Dad kept these reviews even though they weren’t good reviews. I get keeping copies of documentation that is full of compliments - I do it all the time. But Dad had stored pages and pages of notes from multiple jobs that essentially said, “hey, you’re doing fine but not great; you talk back too much and you don’t have a good attitude; you would be more successful here if you learned how to shut up and nod along when your boss talks to you.” (It’s not even the reviews he was getting that surprised me - that’s all very on-brand for Dad - it’s just that he KEPT them.)

“I don’t understand it,” I told Heidi. “It feels like self-torture - why would you keep all this documentation of the fact that you didn’t belong and they didn’t appreciate you?”

But Heidi didn’t see it that way at all - I don’t remember her exact words (except for the fact that she yelled “HOLD MY DIIIIIIIICK” at one point), but to her, it was a power play. It was a reclaiming, as if to say, “Yeah, that’s who I am - you see me, but you can’t change me. I have it in fucking WRITING that I know who I am and I won’t shift it an inch for you.”

Which was SO GOOD for me to hear, both because it’s been a long time since someone (especially someone who never met and did not know my dad) gave me a different perspective on something Dad did, but also because it made me so sad to think about Dad glumly filing these papers away, letting the words get to him. It makes me feel much better to think of Dad smirking at his desk, putting the reviews away as a giant middle finger to everyone who didn’t appreciate him for who he was.

Things to Be Thankful For on this Less-Than-Ideal Thanksgiving

  • Since no one is in the hospital, it’s automatically better than last year’s Thanksgiving.

  • I get to be in my own house, in comfy clothes.

  • The Dog Show, and specifically Carson the Great Dane (who is SO LARGE and I want to cuddle with him)

  • A “happy Thanksgiving” text from my beloved aunt in Florida

  • A hug from my mother-in-law

  • The group chat, always and forever

  • Hannah Waddingham and her eponymous Christmas special on Apple TV+, during which I only cried twice

25 Things I Learned from My Dead Beloveds - A Seasonally Appropriate Post

  1. You can always change your mind.

  2. It's powerful to be seen and loved for exactly who you are.

  3. Sometimes people see you and love you, even if you can't understand how or why.

  4. Even when it doesn't feel natural or comfortable, it can be really rewarding and gratifying to maintain relationships with your family.

  5. And also - chosen family is important and meaningful.

  6. Always say "I love you" when you mean it and when you feel it.

  7. Go to the motherfucking doctor, even when it sucks and it's expensive.

  8. And also, take your meds.

  9. Be yourself, because there are people out there who will love you for it.

  10. You never know what people are dealing with and going through, and sometimes it will be tough to love them, but you can still do it (and that's okay, even if it feels weird).

  11. Have and enjoy weird hobbies.

  12. Being kind to children (and, honestly, all people) makes a huge difference.

  13. Never hesitate to extend a helping hand to someone who needs it, even if they make that difficult.

  14. Also, accept a helping hand when someone extends one to you, even if it feels difficult.

  15. People can be awesome and still be imperfect. People can be loving and still do damage.

  16. Fully own who you are, even the pieces that aren't as great.

  17. Also, don't be afraid to have a signature candy.

  18. Calmness, steadiness, and a willingness to listen to people goes a long way.

  19. Your job is just a job - don't over-invest in it.

  20. But also, being good at your job will take you a long way.

  21. Don't be afraid to walk away if something isn't right.

  22. There are a lot of ways to be smart, and a lot of ways to be good at things.

  23. Don't judge a book by its cover.

  24. Showing up is the most important thing you can do sometimes.

  25. In some moments, there's nothing you can do to fix anything, or make it remotely okay, and that really sucks.

A Near-Constant String of Apologies

I thought summer was weird, and that fall would be normal because summer was so weird. “I’m so looking forward to things calming down,” I thought to myself at the beginning of September, “because this summer has been a lot.”

Summer was a sprained foot, and an unexpected trip for a funeral, and another unexpected trip to be with a friend in a medical crisis, and two surgeries in the family, and a planned trip with my mom that went all sorts of ways. It was also spending time with friends on patios, and reconnecting with a beloved friend from high school, and other great stuff, but what it wasn’t was routine. It wasn’t steady or calm. (Which is fine! That’s great - that’s life! But also I was ready for things to be much more even-keeled.)

But no.

I thought I had sprained my other foot in September - good news, it wasn’t a sprain. Bad news: it’s gout. LOVE to add another chronic medical issue to my growing list, especially one where the treatment plan is essentially “talk to a dietician (and, by implication, let them tell you all of the foods that you won’t be able to eat going forward).” I don’t have my appointment until late November, and I’m not looking forward to having to guard myself against the utter insidiousness of diet culture (and my own reactions and susceptibilities to that) and also acknowledge that some of those rules/guidelines that I followed out of societal pressure and self-hatred might actually be necessary to manage this condition and make it so it doesn’t hurt to walk.

I also started a new medication for my Crohn’s disease last week - not because I had been experiencing any symptoms, but because there was some active inflammation on my last scan, which is a sign that my previous medication had stopping being effective. (This is pretty common for the meds I take for Crohn’s - I’ve had to change medications every 3-5 years pretty much since I got diagnosed.) The new medication itself was fine - so far, only mild side effects, and I feel like that’s just my body getting accustomed to the meds - but I had forgotten about the rigmarole of it all. Office appointments, lab work, phone conversations with various nurses, prior authorizations for insurance, denials, appeals, etc. And, like, this is all very manageable and not even that onerous, especially right now when I’m not symptomatic / dealing with feeling awful, but it’s so inconvenient and time-consuming. I told a friend that it’s one of those times where having a chronic illness feels like having a part-time job, because the medical profession just does not really exist in a world where patients have other things to do besides deal with their medical business, so all of that is happening during the same part of the day where I’m trying to do the rest of my life stuff (like, for example, my paying job, or making my lunch, or whatever).

AND my oncologist is weirdly very concerned about me having low potassium levels, which is seemingly unrelated to every other medical condition I have, so we’re managing that, too. Working with ALL the doctors this month.

I spent a week in the office at my job (something that happens very rarely - I work from home almost entirely) and moved over 150 boxes of other people’s crap and got so mad I almost cried. And that was before one of my coworkers asked me, “so, are you going to wear that mask for your whole life?” and I had to reply, “well, I like being alive and healthy, so yes.”

It wasn’t all frustrating and inconvenient, though - Peter asked me to throw him a birthday party for the first time ever in our 20-plus-year relationship, and it went so well and was so beautiful. I hit a new personal best on my back squat (250 pounds! I’m strong!). I discovered some new delicious places to eat and got very into The Great Pottery Throwdown (and particularly Keith Brymer Jones, the big British dude who cries with joy and pride almost every episode). We got a new roof put on our house (which is great because now there won’t be a drip when it rains that lands directly on my bedside table, and because we are very lucky that it wasn’t our financial responsibility). I made really delicious potato leek soup.

So here’s crossing my fingers that “Fall 2” (aka Halloween to Winter Solstice) is calmer, slower, in a more regular rhythm. Here’s hoping.

The Highs and Lows of Going Back to Your Hometown with Your Mom for a Family Wedding

+that moment on the drive to Bend when you've fully gotten over Mt. Hood and the landscape changes as if by magic to the High Desert, which is so beautiful to me

+a three-hour lunch with my favorite high-school English teacher, who is 82 years old (fully twice my age) and is more alive than most people I know - we traded gossip about my old classmates and teachers, and she wanted to know about my life, and she told me A LOT about her life, and every single minute of it was wonderful. Absolutely the highlight of my weekend!

-hanging out with my mom and her friends, who spent most of their conversation complaining about how people treat them poorly (while also acknowledging that they don’t ever say “no” or set boundaries), kids these days spend so much time on their phones, and people who work for airlines aren’t as polite as they used to be

-being the only person anywhere wearing a mask

+how genuinely excited people are to see my mom (and, by extension for about 30 seconds, me)

+finding two people over a four-day weekend who are interested in talking books with me

+getting to experience the proximity to nature of camping while also having access to a toilet, shower, stove, and refrigerator (as well as a bed, and a door, and four walls)

+getting to see very important people from my chosen family (people who I think of as my aunts and uncles, and who I hardly ever get to see anymore), and talking to them about whether it was weird for them to hang out with me in my 40s when they’ve all known me since I was a baby. (They assured me it was not.)

+/- getting to hold the 2-year-old son of the groom of the wedding we were attending, a man that I held and watched over when HE was 2 years old, and feeling the full weight and significance of linear time

-wildfire smoke

-events that aren’t organized well, and especially people who put themselves in charge of things when what should happen next isn’t clear (because it’s hardly ever people who are actually connected with the event or are good are leading things)

-that moment where the music from the wedding and the music from the live band playing at the restaurant on the other side of the resort were both loudly audible from the porch of our cabin, and I got one of the most powerful headaches of my life

+the High Desert Museum, just, in general - we stopped there for about 15 minutes so that I could buy a postcard to mail to my favorite 4-year-old, and just pulling into the parking lot brought my blood pressure down 15 points

+how much legitimate fun I had watching the National US Women’s Gymnastics Championships on TV in our hotel room with my mom

+a miraculous last-minute favor from an unexpected source that fully saved my sanity

+a three-hour solo drive back over the mountains, listening to “Under Heaven Over Hell” by Florence + The Machine, which provided the perfect vibe for me to feel some feelings and process some shit

A Mostly Unedited Scream About My Mother

There's a part of me that thinks that every post I ever write is going to be about my mom. (Except maybe the ones that are about my dad.) I've just come home from spending four days in her company, and this trip feels like an entire microcosm of our whole relationship, except it's not. It just feels that way because I'm tired, because I find her exhausting in equal measures to how much I love her.

I am fiercely protective of her, and I also want her to be at least five feet away from me at all times, and I also want her to scoop me up in her arms and just take care of me for once. She is one of the most intent listeners I know and also she instantly forgets things almost immediately after you tell them to her, and when you remind her of this, she will say, "oh, right, I remember" and I never know if she actually remembers or if she just feels ashamed that she forgot. She truly thinks I am one of the coolest people to ever exist and she also is just not very curious or interested in me as a person separate from her. She cannot make or keep a plan to save her life, and she doesn't understand why this frustrates me, despite the fact that we have had dozens of conversations about it. She is the most popular person in any room she goes into, and she is also deeply insecure. She cannot keep her voice down, and she hardly ever tries to. She loves to complain (just like her father, my grandpa) and she gets irritated with me when I try to point out that the people she's complaining about might have a point. She always gets excited when a song she loves starts to play, and she does a little ridiculous dance every time - the same dance, no matter what song. She has smoked cigarettes off and on for her entire adult life, but she still feels bad about it and goes off in a corner to have a smoke (which she calls "having a puff"). And she's even worse about smoking cannabis (which she still does, even though she's given up drinking), which she can barely refer to above a whisper even though it's fully legal and no one cares.

She's adorable and she's infuriating and she's hilarious and she's frustrating and she's sensitive and she's thoughtless and she's generous and she's self-centered and she's charming and she's annoying and I still wouldn't trade her for any other mom I've ever known or heard about. My love for her is so messy that she still pulls the rug out from under me every time, even though I've known her my whole life and she hasn't changed. EVERY time, I somehow think it's going to be different than it is, and I don't even blame her for it any more.

The Top 5 Things I Don't Want to Forget From My Trip to My Uncle's Funeral Last Week

  1. How my cousin’s 3-year-old son ran towards me with open arms for a hug when I first arrived.

  2. Driving past fields and fields of corn on a sunny day, listening to Tom Petty and Fleetwood Mac, and thinking about how my dad probably did the same thing when he was young.

  3. Seeing my grandma speak to her older sister for the first time in decades.

  4. The very specific smell of my grandma’s house, which is somehow exactly as I remember it, even though I haven’t been there since 2006.

  5. Having a conversation with my cousin about what it’s like when your dad dies.

Weekly Report: July 10-16

Watched: Shrinking (Apple TV+) (still in progress)

Listened To: Age of Pleasure by Janelle Monae

Holy crap, the vibes could not be any more different between this album and the last album I listened to. Age of Pleasure lives up to its name fully - it’s about joy, celebration, connections with both friends and lovers, confidence, and having FUN. I know we all know this already, but Janelle Monae is a genius and they can write a fuckin’ BOP - no pun intended, but pun very appropriate, since there are absolutely bops about fucking on this album. (The only iffy part for me is that this is a very reggae-influenced album, and that’s stronger on some songs than others - as someone who doesn’t really love reggae, I don’t love that element as much, but that’s fully a me problem. Janelle Monae can do whatever they want and I would never take that from them.) This is not only a perfect album for the summer, but also something I can put on when I’m washing my dishes after I’ve had a long day, and just dancing around and singing along picks my spirits way up. Shout-outs to “Float”, “Champagne Shit”, and “Haute” as my favorites, with “Waterslide” as an honorable mention.

Read:

  • Cibola Burn by James S.A. Corey (finished)

    • This is the 4th book in the The Expanse series - I started reading these about a year ago, and what I like about them is that they are exactly what they’re trying to be, and they’re good at it. These take place in a universe where humans have populated the solar system, and there are specific cultures and loyalties that differ between Earth, Mars, and the outer planets; they are pretty straightforward space operas. I really like how accessible they are, the pacing of them, and how well they balance the character/feelings elements with the harder science stuff.

  • The Nineties by Chuck Klosterman (still in progress)

  • The Traitor Baru Cormorant by Seth Dickinson (in progress)

Made:

  • knitting project: a confidential overdue gift (still in progress)

Weekly Report: July 3-9

Watched: Shrinking (Apple TV+) (still in progress)

I started this because it’s co-created by Brett Goldstein, my current celebrity crush, and because I heard good things from my brother and my dear friend Cyl (two very reliable recommendation sources). It’s a story with grief at the center, and so far they’re really masterfully threading the needle between the pain of that and some really great comedy. It’s one of those shows that comes right up to the edge of making me cringe with the realness of how messy grieving can be and how often grieving people make terrible choices, but so far they’ve been handling it really well and resolving it in a way that feels good to me. More to come when I finish it!

Listened To: But Here We Are by Foo Fighters

I did not do this on purpose, but this album is also completely centered in grief - their drummer (Taylor Hawkins) and Dave Grohl’s mom both died in 2022, and lyrically it’s so clearly about what comes along with that: the shock and the disruption and the sadness and the love that doesn’t have anyplace to go anymore. Musically, it is very familiar Foo Fighters territory, which sounds like it was deliberate - a statement that they released with the album references that they are “sonically channeling” their 1995 debut album. I found it really sad and really beautiful, and something I can see coming back to many times.

Read:

  • Cibola Burn by James S.A. Corey (still in progress)

  • The Nineties by Chuck Klosterman (still in progress)

Made:

  • knitting project: a confidential overdue gift (still in progress)

  • Mushroom Marsala Pasta Bake from Smitten Kitchen for a friend recovering from surgery

2022 Year In Review

One reason that I really feel drawn to doing “Year in Review” posts (and have ever since I had my little livejournal way back in 2004), and one reason that I miss the way I used to use social media (which I will likely write a whole other post about) is that I feel like I don’t remember my life. Which is a wild thing for me to say, as someone who can often access crystal-clear, multi-sensory memories about specific events and periods in my past. But I do have big gaps in there - like, I had to ask my mom earlier this year how my family celebrated Easter when I was a kid, because I could not recall - and what I find even more disheartening is that I often can’t recall the feel of my life, what the experience of different periods of my life was like as I was in them.

I think this is a feature of my depression, honestly - when I am depressed, it is nearly impossible to remember that there has ever been a part of my life that didn’t feel like that. Even though it’s actually impossible for this to be true, it feels like my life has always been like what it’s like now. Which is a real trip when you intellectually know that’s not the case, but knowing it mentally doesn’t move the emotional needle, like, at all.

(Also, there’s a real possibility that this is just a part of getting older - now I have 40 years of life to try to remember, whereas younger, more-able-to-remember versions of me had smaller chunks of territory to cover. Who knows? Brains are weird.)

So now that I’ve written three entire paragraphs about why this post exists, please enjoy my 2022 Year in Review!

First of all, it feels important to me to say that the year started and ended with me getting really abundant, diverse reminders of all of the people in the world who love me, who support me, who will step up when I make a vulnerable request for help and who will cheer me on when something really cool happens in my life. (Specifically, I’m talking about all of the kind messages I got for my 40th birthday in January, and all of the wonderful messages I got earlier this week when my episode of Jeopardy! aired.) If it hadn’t been such an obvious set of bookends to the year, I might not have noticed it, and it’s really important for me to notice it, because there were so many days in between that I forgot that, that I felt very alone. And that’s the version that’s not true. It’s important for me to remember that.

Other cool things that happened this year include (in vaguely chronological order):

  • Working with my brother on some of his creative projects

  • Starting to tint my brows and wear bright lip colors as an experiment for showing up differently in the world

  • Getting a promotion at work (kind of? There are some elements of working in an architecture firm that are weird when you’re not any kind of architect)

  • Going to a family wedding (which I am insisting on calling it because, even though I am not biologically related to any of the people involved, I have known them all my entire life), and having the wonderful experience of being welcomed and embraced and really having my heart filled by it

  • Setting up weekly phone calls with a friend who I don’t see enough

  • Having a hawk hang out in our yard for a couple of days

  • Spending 10 days living in a house with my three closest friends, which was an unimaginable luxury of mundane time spent together

  • Watching my husband follow through on his plan to set up a community board-game meet-up and seeing how many people out there are on the same page as him in the most encouraging way

  • Celebrating our 10th wedding anniversary (and acknowledging that I have now been dating, engaged to, or married to Peter for fully half my life, which is truly wild, and that fraction will keep getting larger, which is wilder still)

  • Getting to achieve a previously-abandoned childhood dream and flying to California to tape an episode of Jeopardy!, which was such a thoroughly positive experience that I can hardly believe it

  • Going to see Lizzo in concert with two of my best friends, holding hands and dancing and screaming along

  • Starting seeing my personal trainer again and getting to lift weights, which has only just happened but feels very hopeful

That’s an astonishingly long list of positive things in comparison with the big hard things that happened this year: the death of a friend I loved very much, the death of our beloved cat Pixel, and having to be put on blood pressure medication this year, which in comparison to the other two is pretty laughable, given that it’s had a negligible effect on my life overall, but it was such a signal of the tangible effects of the stress of the last several years on my body that I couldn’t help but be unsettled by it.

And there were also some things that were both big bads AND big goods - beginning the construction of a bathroom in our basement is the culmination of a years-long plan and will make our house an even better place to live and welcome people AND ALSO it has caused really significant disruptions and stress, and those will be continuing into the new year. And my father-in-law having what turned out to be a pulmonary embolism on Thanksgiving was terrifying and distressing, AND ALSO thank God they found it when they did and he seems to be on the path to full recovery now. I had two teeth removed, and one dental implant placed (with another coming next year), which was all painful and inconvenient AND ALSO something I’ve been anticipating/dreading almost my entire life, so there’s a lot of relief with knowing that it’s taken care of now.

But I’m likely to remember most of those things, the high points and the low points. I also want to remember that 2022 was the year that I did workouts in virtual reality, and that I participated in a community gratitude experience via my friend’s Good Things spreadsheet, and that I discovered a sudoku app and was comforted and excited by the challenge of it, and that I spent so much time this year cleaning out my office and thinking about what to keep and what to get rid of. Those are all things that were part of the texture of my life, things I did every day (or at least most days), that were part of what 40-Year-Old Sarah (who’s only around for another few weeks) did with her time, with her “one wild and precious life” (credit to Mary Oliver, as always, for everything).

And also, just for funsies:

  • Read 15 books this year that I’d never read before, which is not a ton for me personally but better than most recent years - I went through a real romance novel phase in the early part of the year, which was fun and new for me. Most notable:

    • Rest is Resistance by Tricia Hersey

    • Leviathan Wakes by James S.A. Corey

    • Nona the Ninth by Tamsyn Muir (but more so just the experience of reading all three Locked Tomb books back-to-back)

    • Osmo Unknown and the Eightpenny Woods by Catherynne M. Valente (which is kind of cheating, since Cat is my friend, but I honestly did really love this book)

  • Listened to:

    • a lot of what I’ve come to think of as “Dad Rock” - albums from the 70s that my parents listened to a lot when I was a kid: Graceland by Paul Simon, the Eagles greatest hits, Little River Band, The Alan Parsons Project, Herman’s Hermits, The Lovin’ Spoonful

    • Raw Data Feel by Everything Everything, which my brother introduced me to on a summer road trip

    • Special by Lizzo, of course

    • RENAISSANCE by Beyonce, OF COURSE (I still listen to this album at least three times a week)

    • a number of personally built playlists with themes including:

      • Sensitive Rock Songs

      • 80s Forgotten Wonders

      • 90s Lady R&B

      • Disco Inspired (Spring 2022)

      • Ethereal and Powerful (Fall 2022)

    • also a bunch of new podcasts:

      • Best Friends

      • Add To Cart

      • The Deep Dive

        • These three really upped my quotient of “Chaotic Lady Duo” podcasts that I listen to, which was really great for me

      • The Sum of Us

        • HIGHLY recommend this one

      • We Can Do Hard Things

      • Funny `Cause It's True

      • Work Appropriate

      • If Books Could Kill

  • Watched 14 new-to-me movies and 14 new-to-me seasons of television, and honestly there’s so much that I didn’t get around to watching this year that it feels ridiculous. Notable shows/movies:

    • Watch Out for the Big Grrls, which I highly recommend

    • Andor, which blew me away with how good it was

    • Encanto, which emotionally devastated for about a week

  • Made an Hourglass Cowl (knitted), designed and sewed curtains for our round kitchen window, hemmed curtains for Peter’s office in the basement, and knitted an Eastern Market Tote just for fun.

Is This Working?

One of the biggest surprises for me about quarantine has been how much my negative feelings about my job haven’t changed. I honestly thought, before all this, that if I could work from home every day, I would find it a lot easier to deal with the petty frustrations of my job. But that hasn’t been the case at all - if anything, I’ve been feeling more frustrated and resentful of my job. It’s become even more clear to me how silly my job is in the grand scheme of things, how little the emails I write and the meetings I attend matter.

I’ve been in therapy for 12 years, and something that’s been a consistent topic during that time is my relationship with my work/job. I was raised with the story that I would get good grades and get a “good job” (i.e., an office job with benefits, unlike what my parents had) and then that would be it - my life would be smooth sailing. And then I did that, and was desperately unhappy. As my therapist and I have been unpeeling all of the various layers of that, I’ve been hoping for a solution - some combination of factors that would come together to make me be able to enjoy my work/job. I’ve changed jobs (four times), tried to adjust my mindset about work, focused on creating fun/meaning/fulfillment outside my work, etc., etc., etc. And I’ve never gotten there, but I’d also sort of resigned myself to being unhappy about this huge portion of my life because adults need to support themselves and that’s what everyone does, right?

But then I got leukemia and spent six-plus months on medical leave. And I got *really mad* about how much of my life I have spent at work. I just kept imagining what would have happened if I had died, and how mad I would have been that I had spent 40 hours a week (plus commuting time) over the past 14 years giving my time and effort to a collection of people and tasks and organizations that (with very few exceptions) I had no respect for or investment in.

I feel like this is a pretty typical narrative in the self-improvement space, and then the next part is “then I started pursuing [this thing that I’d always been passionate about: baking, making jewelry, writing, making clothes, whatever], and now I’m a huge success!!”

But I don’t have a thing I’ve always been passionate about that I can turn into a job. I do have a chronic disease and a non-negotiable need for health insurance.

I’ve been feeling very stuck about it.

Reading Captain Awkward’s latest post helped, though:

“I also want to say that if you’re feeling disconnected and useless and unsure of what your purpose should be right now, you’re not alone, and it’s possibly because a lot of the messages you were given about how to be safe and good and happy only worked if you cultivated a habit of tuning out the suffering of people who made your comfort possible and mentally reframed a history of institutional and systemic failures into individual inadequacies. … Then when you ran into trouble, everybody told you to look within yourself for the answers and work on yourself, so you did, but here you still are, because it turns out that “inside the letter writer’s self” isn’t the only place that problems live and because the pacts that promised a certain amount of success and security in return for perfecting the perfect economic unit self are breaking down much faster …. We lucky ones who are able to work from home are in a place that we cannot goal-set and self-improve our way out of…

I would add: If you still feel like something is missing, action is the antidote to despair.”

Captain Awkward referenced another great post on Jezebel: “How Do I Figure Out What I Want in Life When Every Day Feels the Same?” that also had some really great stuff in it (emphasis mine):

I recommend cultivating a healthy resentment toward your work. Put in just enough effort to keep your job and no more. The fantasy that an exciting career is enough to sustain a life is one of the most harmful of the modern age—you were never going to find meaning there.

I don’t think we really find meaning at all. We build it, most often with others. The only real antidote I’ve found to a sense of ever-present sameness is to attend to things that grow and change: living things. Care for something alive—start with something small and pitiful like a plant, if you want. A cat; a friend; a neighbor. Be wasteful and unproductive in your pursuits.

So that’s the next thing for me to try: to let go even more, to give fewer fucks about my paying work and more about my home and my community and myself.

Do Not Now Seek the Answers

Because I’m a very fortunate person (all loved ones are healthy, still employed and therefore financially comfortable, I really like being at home and not having internal conflict about how and whether to spend time with people, etc.), I’ve been spending the majority of my free time during quarantine either playing Animal Crossing and watching Law & Order (two great tastes that taste great together!), or having a raging existential crisis about the purpose of my life and what I should be doing with my limited time on Earth.

As I was telling my therapist, there’s literally never been a time in my life that I haven’t had a goal or a target or something I was trying to achieve - I’ve always had something that I thought I needed to do to be the kind of person that I thought I needed to be.

The plot twist is that, after the last couple of years, I’m trying to completely separate my self-worth from what I achieve or produce. I’m trying to teach myself that I am worthy and deserving just as I am, without checking any boxes off of a list or bringing any particular gifts to the party.

I’m also trying to always remember that safety is an illusion, and nothing is certain, and assuming that I know anything about what the future looks like is only setting myself up for disappointment.

And so I don’t know what life looks like when the focus isn’t on the future, and on trying to earn my place in the world, and on making sure I’m following a plan to get to where I think I need to be.

And the other day, a funny thing happened. I told my therapist, “I hate that this happened this way because it sounds like the most ridiculous woo-woo bullshit.”

I was meditating, which I often do (for about five minutes in the morning). I was trying to get my brain to let go of the worries around finding the meaning of my life, and I had this lightning-bolt realization about the fact that I’m continuing to look for certainty and the “right” answer, even though I know that’s not possible. And I hazily remembered this quote from Rainer Maria Rilke’s Letters to a Young Poet:

Be patient toward all that is unsolved in your heart and try to love the questions themselves, like locked rooms and like books that are now written in a very foreign tongue. Do not now seek the answers, which cannot be given you because you would not be able to live them. And the point is, to live everything. Live the questions now. Perhaps you will then gradually, without noticing it, live along some distant day into the answer.

So that’s the thing I’m trying now: not trying to find the answers, but just being as present as I can right now, to really learn what does and doesn’t work for me, and make my decisions accordingly.

"None of Us are Going to Starve to Death"

Something about me: I grew up feeling like my family was poor, but we really weren’t. My dad went through some surprising job changes, and my mom was incredibly anxious, but at no point was it even a question that I would have enough to eat. In fact, I often refused to eat the food I was offered - I was a very picky eater, and the rule in my house was that you either ate what was offered, or you didn’t eat. And I remember, even as a pretty small child, thinking, “that works for me - I’ll see you at breakfast.”

I have a strange relationship with food - which, honestly, I think many, many people do - but food insecurity has never come into play for me.

That’s still true, absolutely. Even though I can’t just waltz into a grocery store whenever I want and have the full cornucopia of the world laid out before me, my cupboards and my fridge and the two freezers I own are all full. It’s something I’ve said multiple times to my husband as a way to address anxiety: “none of us* are going to starve to death.”

But, three paragraphs of disclaimers aside, I can’t help but notice how much safer and more comfortable and more light-hearted I feel today, after having made a grocery store run and stocked up on food for the next two weeks. Today, I can eat whatever I feel like eating - yesterday, when I down to the heels of my last loaf of bread, I felt it, even though I knew that I was getting groceries today, and then even if I didn’t get bread, I would get *something*. A number of really big dominoes would have to fall for me to not be able to have bread, but something way back in my caveman brain picked up the scent of me not having a particular thing to eat, and starting ringing all sorts of alarms.

Tonight, I get to have scrambled eggs and toast for dinner, and sometimes that’s my fallback too-tired self-care dinner. But I bet tonight I’m going to really *feel* how lucky I am, and enjoy how delicious it is.

*In this case, by “none of us,” I mean me, my husband, and my husband’s parents who live next door. I’m definitely conscious of the fact that there are people constantly starving to death all of the time, and probably more in this crisis situation. And I hate that.

Anxiety in the Time of Coronavirus

Fun fact about me: from the moment that I was diagnosed with leukemia in January of 2018 until I went into remission seven-plus months later, my anxiety disappeared.

(I was wildly anxious leading up to my diagnosis - before Peter drove me to the ER for what would eventually be my cancer diagnosis, I told him, “I’m afraid they’re going to tell me that there’s nothing wrong with me and that I’m being a big baby.” It was the exact opposite of that, as it turns out.)

When I was in the midst of the Cancer Adventure, I didn’t feel anxious because there wasn’t any way for me to be wrong - in terms of treatment, I trusted my doctors and we created a plan and then we did it step by step. And I feel like, in all of the non-cancer parts of my life, leukemia gave me the biggest possible permission slip to just do whatever felt right for me at the time. I felt completely freed of the pressure to respond to messages or placate people that I didn’t want to deal with or choose anything to do, moment to moment, that didn’t sound good to me. (Which was its own difficulty - I’d never really listened to my internal voices before, and so there was and still is a lot of what feels like a lot of random direction changes or instincts I don’t understand logically, so I’m still stepping through that and figuring things out.)

When I got back into “normal life,” my anxiety came back, because everything was back in my hands. Because I had gotten through this big scary thing and survived, I felt a lot of pressure to make the most of things - to succeed, to be happy, to seize the day and be even better than I had been. I didn’t give myself any time to adjust, to look back at what had just happened and maybe process it a little bit - I just threw myself back into what had been “normal” for me and what I desperately wanted to be normal again. And that meant I could fail - that meant I could take a wrong step and stumble and screw up and step backwards. Which is what my anxiety is always trying to protect me from.

Cut to now, March 2020, the Pandemic Times.

I signed up for this thirty-day #JournalYourFeelings challenge, because being conscious of and being able to listen to my own feelings is still incredibly difficult for me, and journaling is a comfortable venue for me to work with that. We’re five days in, as of today, and it’s been a weird exercise - a lot of the prompts have been personalizing concepts like Fear, Inner Wisdom, your Inner Child, etc., and that doesn’t really resonate with my brain, which naturally tends to see things in a really concrete way. But I’m trying - all I can do is show up and try.

Today’s prompt stumped me, though. The challenge today was to write a list of all of the fearful and anxious thoughts I’m having, and … I didn’t have any? I couldn’t think of any.

I’m not saying that I haven’t been fearful and anxious over the last two weeks, since the world shut down - I definitely have. Lots of tension in my jaw, tightness in my chest, shallow breathing, headaches. It comes and goes - some days I feel fine, and some days I’m pretty useless.

But let’s break it down: I’m an introvert homebody, so being at home with my favorite human is what I want to do most of the time anyway. I have a job where I can easily work from home, and the company that I work for is sensible and supportive. I have a house that’s comfortable, and large enough that Peter and I can both work from home without getting on each other’s nerves; we’re financially comfortable, so we can get things delivered as we need to. I live 5 minutes from a grocery store, and we don’t have any special supply needs.

As long as I follow the rules, and stay home except for a run to the grocery store every couple of weeks, there’s no way for me to be wrong here. So my anxiety doesn’t have a lot to say.

My husband has anxiety, too - he’s never seen a professional about it, but I don’t think either of us have any doubt about it. But the two of us experience anxiety, and react to anxiety, in almost completely opposite ways.

Peter trusts himself completely, in a way I find awe-inspiring, frankly. He’s self-aware and able to examine his own thoughts and beliefs, but I don’t know that I’ve ever seen him doubt that the option he’s chosen is the right one. When he needs to make a decision or a choice, he digs in, gathers information, and picks based on what’s most likely to have the outcome that he wants. And then he does it. I’ve never seen him second-guess himself once he has decided. It’s so cool as to be almost magical to me.

However, there’s a lot of things in the world that he can’t control, and those are the things that worry him. He keeps an extremely close eye on the weather. Traffic makes him so angry that he’s shifted his work schedule two full hours just to miss the bulk of it. His most common frustration is when he can’t understand - when he can’t imagine why something isn’t unfolding logically.

Whereas things I can’t control roll off my back, in a major way. Weather and traffic and the stock market are just big forces that will do their thing regardless of what I do - they may overlap with my life, or they may not, but it doesn’t make sense for me to do anything about it until it comes along and I know what I’m dealing with. I don’t need to know it’s going to snow the night before; I need to know it before I open the door, so I can grab my boots. I think this is a consequence of a childhood that felt very chaotic and where I frequently felt that our family was right at the edge of financial ruin, which doesn’t sound great when I say it like that, but it has had the weird side effect of shearing off a lot of what makes other people anxious.

I want to let it all exist outside of my bubble; Peter needs to take it all in so that he knows what to do. We don’t always play well together that way.

But that means I am not having anxious or fearful thoughts about what’s going to happen next, or what happens if the economy crashes, or what happens if one of us gets sick, or if the grocery stores run out of food, or if we all turn on each other, or or or…

I’m having anxious thoughts about whether my husband is mad at me because the shower broke while I was in it, or whether I’m a good friend because I don’t like talking on the phone, or whether I’m eating too many carbs - all of the same things I have anxious thoughts about when we’re not all confined to our homes to stop the spread of a novel virus. Because my anxiety wants me to be perfect; it doesn’t expect that the world will be.

Making A Resolution About Resolutions

I really want to be making a post with my New Year’s Resolutions; I love them. I love an opportunity to look inward, ask myself what’s working and what’s not, and decide what the next best steps are. I love that back-to-school feeling of “maybe this is my year”. I love having a plan and a checklist and knowing what comes next. Especially coming off of a rough year, I love the hopeful feeling that makes me feel like I’m about to seize the day, 365 times in a row.

But part of the wisdom I’m bringing with me out of 2019 is being able to differentiate between what I want to have happen, and what is possible or even just realistic to have happen.

And here’s the thing about January. The 15th will be the 12th anniversary of my dad’s death; the 19th will be my 39th birthday; the 24th will be the 2nd anniversary of my leukemia diagnosis. That ten-day period carries a big mental and emotional load for me.

Add to that my usual post-holiday comedown and the fact that (once again) I am starting a new job at the beginning of January, and it’s just a lot.

Part of me really wants to be the kind of organized, efficient, shit-together person that would be able to integrate all of the above and also, say, do yoga every day and clean out my office. But I know enough now to know that even if I could do that, even if it was technically possible, it would require me to be 100% disciplined and focused and just *on it* at all times, and I can’t do that. I don’t even want to. I need to leave room to be relaxed, to make choices, to be able to let go of things.

And so that means New Year’s Resolutions in February, I guess. At least, that’s what I’m going to try this year.

That doesn’t mean I don’t have a lot of *thoughts* about what I want to do in 2020, or what I think would benefit me the most, or what work needs to be done. Just that I don’t have to decide right now.

2019 Year in Review

Full Disclosure: 2019 really sucked for me. It was a really difficult, uncomfortable, seemingly unrelenting year. Or, at least, that’s what it feels like right now. 

I struggled because I both lost my illusions around safety and certainty and the idea that I could plan my way out of any suffering and hardship (thanks, Great Leukemia Adventure of 2018) and also tried to dive head-first back into the comfortable, orderly, safe-feeling life that I had missed out on 2018.

I started a new job on New Year’s Eve 2018 and my last day there will be this Friday, Jan. 3rd. I made it an entire year in a place that I knew on Day 7 wasn’t right for me. And part of me is really proud of myself for working with the reality that I was in, and trying my best, and doing the work to make sure that I was doing my best in all of the places that were within my ability to change. And another part of me is really disappointed that it didn’t work out, and frustrated that I made myself carry that burden for so long, and discouraged that I have to try again in a new place now, and worried that this new place won’t be any better. 

I learned how truly vital it is to take good care of myself, not in a bullshit bubble bath way, but in a way where I go to bed on time, and give up sooner on things that aren’t working, and worry less about whether I’m being a “good” employee or roller derbist or friend. But I also learned that it’s a lot of work and time and effort to take care of myself, and that it requires a lot of trade-offs, and that it often feels really uncomfortable because it goes against everything I’ve learned to do in the past 37 years of my life. 

I lost one of my major coping mechanisms - just gritting my teeth, putting my head down, and enduring things - because ever since getting out of the hospital I’m apparently constitutionally incapable of disregarding that voice that says “this isn’t right for you”. Which is great! I love that voice! I need it! But I also didn’t have the practice in setting boundaries / giving myself permission / using my words that I needed to truly make those changes, so I just felt all the misalignment and anxiety but didn’t know what to do with them. (The answer, from where I’m sitting now, is just: do something different. Anything. Do literally one thing different and see how it goes.)

I learned that, now that I’ve spent a decade-plus in therapy learning to manage my anxiety, there’s a big bubbling cauldron of depression under there, and there always has been, and I have no coping strategies for it at all that aren’t just manifestations of my anxiety because that’s how I’ve always powered through it. And that doesn’t really work for me any more.

The depression is also why, when I look back on this year, I can only see the struggle, the swamp, how hard it was to put one metaphorical foot in front of the other. When this was also the year that I saw Lizzo in concert, and spent a week in Disneyland, and skated in four roller derby bouts (thereby achieving a goal I’d been working towards since 2015), and made it a full year post-cancer, and took my max squat from 135 pounds to 225 pounds, and experienced all manner of other beautiful moments, even those as mundane as sitting in my living room and eating pizza with my husband while we watched The Simpsons. It’s why I really struggled to feel the gratitude that I rightfully should be swimming in every day, because by all objective (and most subjective) measures I lead a unironically blessed life.

I want to believe that all of this struggle and realization and learning and discomfort and frustration will lead to something - that, in some future time, I will look back on 2019 and think, “wow, that was really the start of so many things I needed to get me to a better place.” Once upon a time, I would have believed that - it would have been necessary to believe that, because I believed in an orderly world and that good always comes out of bad. I don’t necessarily think I believe that any more.

But I believe in the possibility of it. Not that it always does but that it can, if I do what is within my power to make that happen. And I think that’s enough, for now. It feels like a place to start.

Friendship is Rare

Hello! I am a 36-year-old woman who just typed "how to turn acquaintances into friends" into Google. This is my life.

The older I get, the more I realize that I am not only not that great at making friends, I don't even really know *how* other human adults generate and sustain relationships with other humans. Almost every single significant relationship in my life currently, I sort of fell into (i.e., was adopted by extroverts).

Part of it is that I'm an introvert and a homebody - I really do enjoy my own company, and prefer being at my own house to pretty much any other place, so I can go without seeing friends for a long time.

Part of it is that I have a chronic disease, and so it takes a lot of my energy just to get through a normal day.

A big, big, big part of it is that I grew up thinking I had to "earn" people's friendship, love, goodwill, affection, etc. - until my dad died and I went into therapy, I really on some deep level believed that my purpose in life was to be there for other people, to give love to other people, to make life easier for other people, and that asking for any love, support, help, etc., would disqualify me from having friends / loved ones.

(WOW, that is fucked up when I type that out. Also, please note that my dad died and I started therapy in 2008, so we're going on a decade here off and on of untangling this shit. *sigh*)

So, now, in 2018, I am intellectually 100% on board with the concept of my relationships being reciprocal, and needing to not just give but also receive love, support, etc. (Emotionally I'm still catching up, but that's what "fake it till you make it" is for, right?) And, at the risk of sounding conceited, I'll even go as far as to say I'm pretty good with breaking the ice and, like, getting people to react positively toward me. (Thanks, Mom's incessant hostessing and four years in a sorority!)

Where I'm stymied is the logistics of the thing: even if I made it as simple as "hey, I think you're swell, want to be my friend?", then what? How do I go from leaving comments on their social media posts to being in-person friends? I probably go out for coffee with that person, or maybe a meal, right? Or maybe I invite them to my house? But then what do we do? Like, obviously we talk to each other, and exchange information and ask each other questions (oh crap I really do sound like a robot when I type this all out) .... but there should be another layer to it, right? Like, something to get the conversation started and/or to look at / comment on when there are awkward pauses?  

And when do I do this? On a weekend, which are my only two full days off and also need to somehow encompass me getting chores done and spending quality time with my husband and also possibly hopefully just getting some goddamned rest? Or on a weeknight, which makes for a quicker hang-out with more defined starting / ending times but also has to fit around eating and me getting to bed early enough to be up at 4:45 am the next morning?

Trust me, too, I realize how shitty and dismissive this all sounds - like "oh, no, dealing with other human beings is SO HARD, they are the worst, it's such a burden on me to do this very normal thing that almost every other human does, seemingly without thinking about it." The truth is, I actually generally find it really easy to like people. I've been very fortunate, especially in the last two or three years, to meet many AMAZING people, people who I adore and think are wonderful and who I think would be wonderful additions to my life (and I could probably be a pretty good addition to theirs, too). But then I get stuck on my (not helpful, not necessarily true) thoughts of "you like them more than they like you; you'll get too friendly too quick and they'll think you're a weirdo; once you make plans with them, they'll get bored and realize that you're not special" OR, even more unhelpful, "once you open that door, they'll want things from you all the time, and you'll have to do them all, because saying no to people in need is not something you get to do."

I've even been trying, in my nerdy, Ravenclaw sort of way, to brainstorm, like, what friendship even is, what friends should be to each other, because I feel like I don't even have a really good grasp on what that looks like (as is probably abundantly clear from the preceding paragraphs). So far, I've come up with this:

  • RECIPROCITY - I am really really focused on this. It feels selfish to me, which lets me know that my calibration for this stuff is way off. 
  • Telling the truth (in a kind, helpful way), even when it's not easy
  • Equal footing (this is probably an element of reciprocity)
  • Asking for help / being vulnerable / sharing both feelings and work when things get hard
  • ALSO sharing happiness and good things and fun stuff we've discovered - not always using the safe space of the friendship to offload hard experiences and feelings
  • Communication / talking to each other / staying caught up on each other's lives

I don't know, y'all.

Seriously, how do people do this? Am I some sort of weird robot that doesn't prioritize human contact, or is everyone else struggling with this and I'm just not seeing it? 

At Your Service

Today, a teammate / friend posted on social media about Walpurgisnscht, the night before Beltane - they said, "It is tradition to burn what isn't serving you as we move from the dark time of the year to the light. What isn't serving you?"

That question rang my head like a bell.

Truth be told, even before the Cancer Adventure got into full swing, I knew that 2018 was going to need to be a year where I needed to make major changes. I spent the beginning part of 2017 getting a new job, the middle part of 2017 hating my new job, and the late part of 2017 slowly having more and more Crohn's symptoms to the point where I felt like I was sort of enduring my own life.

When I got the flu on Dec. 26th (the real start of the specific chain of events that led to my leukemia diagnosis and me sitting in a hospital right now getting my second round of chemotherapy), I felt it as a message from the universe. I felt like I was being told: "SIT DOWN. You've been ignoring these messages from your body and your heart, and if things need to get drastic for you to hear them, then that's what's going to happen."

(Side note: I am not saying "hey, if you ignore your body and heart, you're definitely going to end up with leukemia". But it's really hard for me not to see this as a wake-up call and an opportunity for me, personally, in my particular specific life.)

What getting cancer did was 1) raise the stakes, like, A LOT, and 2) give me time to think about what really needs to change in my life. But the problem is ... I don't really know what I want? Many, many therapy sessions, self-help books, online articles about building a life that you don't want to escape from, sessions with my journal, etc., etc. I still find it so hard to even imagine a life that feels good, that feels purposeful and full of joy, but where I also get to put on my own mask first.

To bring this back to the beginning, the concept of a life that *serves* me, and removing elements that don't serve me, sort of turned my brain inside out. Because I have an association with service that it's one-sided - I am here to serve, but I'm not meant to be served.

My first instinct to dig into this a little bit more (which I think is a technique I stole from Havi at The Fluent Self) was to literally Google the definition of "serve". (They didn't call me The Human Dictionary in high school for nothing.) And, surprisingly, there were a lot of sub-definitions that really resonated with me. There was the expected "to perform duties or services for another person or an organization", but there was also:

  • "to spend (a period) in office, in an apprenticeship, or in prison"
  • "to present (food or drink) to someone"
  • "to (of food or drink) be enough for" (e.g., "this recipe serves 4 people")
  • "to deliver a document to (someone) in a formal manner"
  • "to be of use in achieving or satisfying" (as in serving a purpose)
  • "to be of some specified use"

So my interpretation of "what isn't serving you?" can be translated / expanded to:

  • "What in my life isn't doing anything positive for me?"
  • "What in my life isn't teaching me anything that I want to learn?"
  • "What in my life isn't nourishing me / taking care of me?"
  • "What in my life isn't enough for me? What makes me feel like I'm not enough?"
  • "What in my life isn't giving me clear feedback / intelligence about what it is? What isn't communicating with me?"
  • "What in my life isn't helping me be satisfied?"
  • "What in my life isn't of use?"

Conversely, I can look at the opposite of these questions - what in my life is serving me, when I look at it from these perspectives?

I have some immediate responses, especially on the positive side, which is really encouraging - but I also know that I'll have to really break some shit down to component parts, and to really take a hard, honest look at some of my habits and tendencies, to get to a starting point of releasing / burning away some of these things. (Like, definitely "my current job" would be the answer to a lot of these questions, but I don't think I can get away with not having a job for too long - I'll need to look at what about my job isn't serving me, and what about other jobs has, to find good intel about it. And I know that my habit of not being clear with other people about my expectations is something that isn't serving me right now, but that's just the tip of the iceberg.) And then, of course, I'll need to prioritize among the (I'm sure) several things that this exercise will result in.

But this feels like a good start.

I Have No Fucking Idea What I'm Doing

Honestly, I'm sort of uncertain about what to do with this space. This was supposed to be my place to process things in a more long-form way than social media allows for - sort of in the way I used to do in my livejournal.

But (despite the fact that literally no one knows this page exists) I feel sort of constrained - like I have to hit a certain level of profundity, and thematic harmony, and wry humor, and also come up with a great short poignant title to use.

And those two things feel really in conflict for me - I want to be able to be vulnerable and honest and open, but also make it really entertaining and relatable and well-written. And that's ... not possible. It's just not.

I'm sort of trying to get over that thing where I try to always put on my best face, though. I'm trying to be more okay with that crawling discomfort I feel when I put myself out there and don't put in the previously-requisite effort to shine myself up or to add that self-deprecating overlay so that people know I know I'm not *that great*.

Which is pretty counter-intuitive to the part of my life where I'm trying to teach myself that I am actually pretty great, and I deserve great things.

I think Past Me would be bummed that it's this hard. I think Sixteen-Year-Old Sarah would be pretty damn disappointed that, even with almost two more decades' worth of life experience and almost one decade's worth of therapy under my belt, there are no easy answers. There's no process, no equation, no checklist. God, I hate that. I love checklists and I hate that life only fits into them in the most shallow, narrow ways.

I hope that means it's worthwhile, to work this hard and push against this and struggle. I try really hard to divorce myself from the idea that something doesn't count unless it's hard, because that steals a lot of joy from me, but in this case, maybe that will make me feel a little bit better.